Key Findings

High quality care for people living with serious illness depends on sufficient access to palliative care specialists as well as all clinicians having basic skills in serious illness communication, pain and symptom management, caregiver support—and an awareness of inequities.

  • While palliative care has become the standard of care in large hospitals, gaps in access remain in for-profit and rural hospitals.

    83.6% of U.S. hospitals with 50+ beds report having specialty palliative care services, and this prevalence climbs to 96.2% for hospitals with 300+ beds. However, the proportion of for-profit hospitals and rural hospitals with palliative care lags behind significantly, at 49.0% and 34.5% respectively.

  • The number of specialty-trained palliative care clinicians lags behind that of most other specialists.

    There are 19,920 clinicians (across all disciplines) in the U.S. who hold specialty certification in hospice and palliative care. For prescribers (physicians, advanced practice nurses, and physician associates), this translates to 2.86 prescribers per 100,000 population nationwide, far below most other medical specialties. This is not nearly enough to meet estimated demand. Policymakers and provider organizations are innovating to meet demand.

  • New payment policies and strategies are advancing palliative care capacity and access.

    Already, 13 states have legislation requiring payment for palliative care services. This includes specific Medicaid benefits for interdisciplinary community-based palliative care, mandates to Medicaid managed care organizations, and requirements for commercial insurers. In some other states, the largest commercial insurers offer palliative care programs, making a measurable difference in outcomes.

  • Increasing numbers of clinicians are gaining basic skills in key drivers of palliative care outcomes: communication and symptom management.

    22 states include continuing education on pain management, palliative care, geriatrics, dementia/Alzheimer’s, and/or end-of-life care in their physician and/or nurse licensure requirements. In other states, medical and nursing boards may have incorporated palliative care content into their opioid training standards. Further, through CAPC’s clinical education, more than 136,000 doctors, nurses, social workers, case managers, and others have completed courses in communication skills, pain management and safe opioid prescribing, non-pain symptom management, best practice dementia care, and other essential palliative care skills.

  • Stark health inequities related to race and income exist for people living with serious illness.

    Not only are Black Americans at the highest risk of mortality for illnesses such as cancer and heart disease, they are also less likely to receive appropriate pain and symptom management. People dually eligible for both Medicare and Medicaid face more than double the rate of mortality than Medicare-only beneficiaries, while at least 10% are living with a serious illness.

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Suggested Citation: America’s Readiness to Meet the Needs of People with Serious Illness: 2024 Serious Illness Scorecard. Center to Advance Palliative Care. August 2024.